counseling and resource center for cancer patients - serving the east end free of charge

Community Support Organizations

Sometimes it will be hard to predict where your journey with cancer will take you and what you will need along the way. Knowing your community resources and the wide range of options available to you may provide you with a sense of empowerment and control.

Challenge: How can I find the organizations on the East End that will address my various needs as I cope with cancer?

Solution: There are a number of community organizations that can provide support for your changing needs. As you face your own unique challenges dealing with cancer, tapping into the network of services that exist on the East End may strengthen your life preserver and connect you with others who face similar challenges.

Community Advocacy
Knowing your rights as a cancer patient and accessing services can be complicated. There are organizations on the East End that focus on empowering, educating and supporting people as they face the challenges of coping with cancer:

American Cancer Society
Cancer Survivors Network, online community (Eng.& Span.) to find hope and inspiration. Provides recources in the local community by maintaining a comprehensive list of organizations that cancer patients and their families can benefit from.
75 Davids Drive
Hauppauge, NY 11788......................................................................... 631-436-7070
www.cancer.org .................................................................................... 800-ACS-2345

East Hampton Meals on Wheels
Delivers meals to homebound clients in East Hampton. Contact the Dept. of Human Services in East Hampton to schedule delivery. The cost is
$8/day for two meals. No age limit.
33 Newtown Lane, Suite 2
East Hampton, NY 11937 .................................................................... 631-329-1669

East Hampton Town Dept. of Human Services
300 Pantigo Place
East Hampton, NY 11937 ................................................................... 631-329-6939

Hispanic Apostolate
Spanish-speaking patient advocate
168 Hill Street
Southampton, NY 11968 .................................................................... 631-283-4379

Lung Cancer Alliance
National not-for-profit organization dedicated solely to helping people with lung cancer, and those who are at risk for the disease, improve the quality of their lives through advocacy, support and education.
www.lungcanceralliance.org............................................................... 800-298-2436

South Fork Breast Health Coalition
Grassroots organization that aims to educate women about the importance of MONTHLY self breast exams, ANNUAL CLINICAL BREAST EXAMS and annual mammograms as preventive measures. Through various support programs the Coalition is also dedicated to helping relieve the day-to-day pressures for breast cancer patients undergoing chemotherapy or radiation therapy by helping them to manage family and home commitments during this stressful period.
Susan Barry Roden
P.O Box 1074, Southampton, NY 11969
www.southforkbreast.com ................................................................... 631-726-8606

South Fork Community Health Initiative (Spanish-Speaking Personnel)
Ongoing advocacy voice for the healthcare needs of the community. Provides educational
programs, family and individual counseling, as well as outreach and safety programs.
200 Pantigo Place, Suite M
East Hampton, NY 11937 .................................................................. 631-329-2425
www.sfchi.org

Southampton Town Dept. of Human Services
116 Hampton Road
Southampton, NY 11968 .................................................................... 631-287-5734

Southold Town Dept. of Human Services
750 Pacific Street
Mattituck, NY 11952 .......................................................................... 631-298-4460

Suffolk County Office for the Aging
The Suffolk County Office for the Aging coordinates a network of services available to seniors. These include assistance, social and recreational programs geared to help you live independently and actively in your community.
Case Management............................................................................... 631-852-1420

Family Caregiver Support Services -
Helps sustain family caregivers who are caring for an elder relative with chronic illness or disability. ........................................................ 631-853-8200

The National Association of Puerto Rican/Hispanic Social Workers
(Spanish-Speaking)
Private practice social workers. Services offered are based on individual needs. Contact them for more information. Most insurance accepted.
www.naprhsw.org ............................................................................... 631-864-1536

Cancer Support Groups
Another way you may find extra support is by joining a support group. This is a place where people who have similar experiences can come together to express thoughts, feelings, concerns as well as receive helpful information. The shared experience can be a powerful source of hope and strength. Groups may be facilitated by a professional or patient volunteers. Many support groups are now available on-line via the Internet. For details on specific support groups in your area check the listing below.

A.H.E.A.D. (African-American Health Education and Development)
Breast Cancer Support group ............................................................. 516-538-0656

Bay Shore/ Brentwood Breast Cancer Coalition
Latino Support Group
Carmen Bryant ................................................................................... 631-273-9252

Brain Tumor Society
Adult Brain Tumor Support Group, First Thursday of every month from 7-9pm
Old Bethpage Library, 999 Old Country Road
Plainview, NY 11803
Billie Wilczek ..................................................................................... 516-747-8749
Donna Lankford .................................................................................. 516-922-4134

Camp Adventure
The American Cancer Society offers a free, one week sleep-away program for cancer patients and their siblings on Shelter Island for one week in August ages (6-18). Volunteers and support always needed.
For more information, please call ......................................................... 1-800-227-2345
www.cancer.org.

Camp Good Grief
A bereavement summer camp for children who have lost a parent.
Sarah Zimmerman ................................................................................ 631-288-8400

CancerCare
Provides counseling by professional oncology social workers to all those affected by cancer. Financial assistance and educational programs are offered as well. Group counseling is also available in person, over the phone, and online to individuals. Extensive telephone education workshops offer a wealth of information by experts in the field and are easily accessible and available.

Theodora Ziongas, Regional Director.
20 Crossways Park North, Suite 110
Woodbury, NY 11797
www.cancercare.org...................................................................... 1-800-813-HOPE(4673)

Colon Cancer Network
Colorectal support group
Contact Patricia Dunn for more information
longisland@colorectal-cancer.net

Ellen’s Well
Support and Wellness groups, Yoga and Meditation
Southampton Hospital
Southampton, NY 11968 ..................................................................... 631-726-8606

Fighting Chance - Hope, Health and Healing; a monthly educational support group for cancer patients and survivors, meets at the Fighting Chance office. Prostate cancer group meets Mondays, once a month. New groups are formulated according to need. For further information call Karrie Robinson, L.C.S.W. or Bill Di Scipio, Ph.D.
112 Hampton Street, Sag Harbor NY. .................................................. 631-725-4646
www.fightingchance.org

Fortunato Breast Health Center
Breast Cancer Support Group
Port Jefferson, NY 11777 ..................................................................... 631-476-2771

Good Samaritan Hospital Medical Center
Cancer support groups available for patients, family members and friends. Groups are run by trained professionals in a strictly confidential setting. ..................... 631-376-4444

Gynecologic Oncology Support Group
Meets the last Tuesday of the month - 7:00 - 9:00 P.M.
994 Jericho Turnpike, Suite 103
Smithtown, NY 11787 ........................................................................... 631-864-5440

Huntington Hospital
Offers several support groups including breast cancer and prostate cancer groups as well as general oncological and bereavement support groups.
270 Park Ave., Huntington, NY 11743 .................................................. 631-351-2568

Joshua’s Place
A Self-help support group, led by cancer survivors. Provides an atmosphere of love & community, where people can come together to move towards inner wholeness.
30 Sanford Place
Southampton, NY 11968 ....................................................................... 631-287-4100

North Fork Breast Health Coalition
Works to encourage and assist in the prevention, early intervention, and cure of breast cancer through advocacy, awareness, networking, and research.
Breast Cancer Support Groups .............................................................. 631-727-1569

Prostate Cancer Support Group - Man to Man
Meets the first Monday of the Month - 5:30 - 7:00 P.M.
Stony Brook University Cancer Center ................................................. 631-444-2552

Sisters of Greater New York, Long Island Chapter
African-American Breast Cancer Survivor Support Group................... 516-385-5495

The Leukemia and Lymphoma Society – Long Island Patient Services
The Long Island Chapter works with patients in Nassau and Suffolk counties offering family support, caregiver support and parents of children with cancer telephone support groups. The peer counseling program, First Connection, connects a newly diagnosed patient with a trained volunteer who has experienced a similar situation. Trained volunteer survivors offer support and information to individuals or patients’ family members who are learning to cope with Leukemia, Hodgkin’s and Non-Hodgkin’s Lymphoma and Myeloma. Presents educational programs on blood cancers as well as survivorship issues.Programs open to patients, families and health care professionals.The Society also offers limited financial aid for patients diagnosed with a blood cancer.
Patient Services Manager-Karen DeMairo
555 Broad Hollow Road, Suite 403
Melville, NY 11747 ...................................................................... 631-752-8500

The Witness Project of Long Island
Breast cancer awareness program for African American communities
HSC Level 3, Room 92
Stony Brook, NY 11974-8036 ...................................................... 631-444-7789

Time for Teens
A non profit organization dedicated to providing teenagers with a sensitive, caring, and creative environment for healing. Focus is on the needs of teens related to bereavement and loss through education and counseling.
Laraine Gordon, C.S.W.
Southampton, NY 11968 ............................................................... 631-338-7258
www.time4teens.org

Upper GI Cancer Support Group
Meets the second Wednesday of the month - 7:00 P.M.
Stony Brook University Cancer Center ........................................ 631-444-4000

Tip #14 Community Resources for Breast Cancer
Southampton is home base for an extraordinary non-profit organization called the “South Fork Breast Health Coalition.” It is a gold mine of useful information for women diagnosed with (or concerned about) breast cancer. The coalition also provides lymphedema massage, help with some transportation, and support groups.

The coalition is run by Susie Roden who can be reached at 631-726-8606. She works closely with the Breast Health Center at Southampton Hospital.

back to topics